Adult Autism: A Future of Acceptance and Support

Whether you have an autism diagnosis, suspect you may have autism or want to advocate for others, you can help foster greater acceptance and understanding.

By speaking out, sharing experiences and challenging outdated stereotypes, we can build a world where neurodivergent individuals of all ages feel seen, heard and valued.

There are meaningful ways “alltistic” (non-autistic) people can advocate for autistic individuals. Being an effective ally requires taking time to fully understand the needs, preferences and experiences of the autistic individuals in our lives. Listening without judgment helps build a supportive relationship based on trust and mutual respect.

Remember, communication can look different for everyone. Some people may express themselves through music to share emotions or thoughts that words can’t capture. Others might prefer writing, drawing or painting to express their thoughts. Movement and dance can also be a powerful way for some people to communicate. Cartoons, memes or even movie quotes can convey feelings or ideas. Sometimes, it’s the simple use of sounds, sign language or something totally unique. It’s all about finding the best communication channels for each individual and meeting them where they’re at.

As more people seek self-identified or clinical autism diagnoses, and as research continues to expand our understanding of autism spectrum disorders (ASD), the need for allies, advocates and supporters will only grow. Dr. Seth Allen, ED.D., director of Autism Services at Brightli affiliate Burrell Behavioral Health, is working to change the misconceptions and inaccuracies surrounding autism, including:

  • Autistic individuals lack empathy or social interest.

“This couldn’t be further from the truth. Many autistic individuals are deeply caring and socially interested. Although their communication style may differ, that doesn’t mean they lack empathy or a desire and ability for connection.”

  • Autism spectrum disorders in adults are all the same.

“Autism is a spectrum, and every autistic individual is unique. They have diverse interests, talents, experiences, and challenges like anyone else.”

  • Autistic adults cannot lead independent or productive lives.

“With the right accommodations and support, many autistic adults thrive personally and professionally. In fact, some of the traits associated with autism — like deep focus, passion for specialized interests, and innovative thinking—can make them exceptional contributors in their fields.”


If you suspect you’re autistic, have a loved one on the spectrum or simply want to be a better ally, creating safe spaces for open conversations is key. By listening, learning and challenging outdated narratives, we can build a world where autistic individuals feel safe, seen and valued just as they are.


Adult Autism: Mental Health and Sensory Needs

For individuals with autism, navigating a world that often misunderstands their behavior can have negative impacts on mental health and well-being. Without a proper diagnosis or support, many adults with Autism Spectrum Disorder (ASD) must manage their well-being on their own.

Autism is a difference in the way someone’s brain and nervous system function compared to neurotypical brains. It doesn’t need to be “treated” or “fixed.” As Alisyn Van Note, a licensed professional counselor[RB1]  specializing in autism with Burrell Behavioral Health explains: “Autism could best be described as a lens through which we see the world. It is simply how the brain works.”

That said, there are strategies, tools, and skills that can help autistic individuals navigate the challenges they face in daily life.

Dr. Seth Allen, ED.D., director of Autism Services at Brightli affiliate Burrell Behavioral Health recommends several approaches for individuals with autism to manage mental health and reduce the sense of being overwhelmed[RB2] :

  1. Establish a predictable routine to reduce anxiety and create a sense of control.
  2. Build self-advocacy skills by developing confidence in expressing needs and setting boundaries.
  3. Understand your unique needs. Self-awareness is key to effective communication and self-care.
  4. Practice self-compassion.

“We are going to mess up; we are human,” Van Note said. [RB3] “We do not need to hold onto the expectations we or others have put up for ourselves; we can, in fact, just exist and just be without doing more.”

Van Note said it’s also important for individuals with autism to be kind and compassionate with themselves.

“We sometimes have a hard time, and we didn’t know then what we know now,” Van Note said. “And when we mess it up, because we will and we do, it is OK. It is OK when we are OK, and it is OK when we are not OK.”

Sensory Well-being and Stimming

Stimming, or self-stimulatory behavior, is a natural way autistic individuals regulate sensory input. Common stimming behaviors include rocking, hand-flapping, humming, or fidgeting, which can help manage stress, improve focus and provide comfort. While stimming is beneficial, it’s also important to recognize when it becomes overwhelming or disruptive and find strategies to balance sensory needs.

Understanding all eight of your sensory systems can help manage overstimulation and sensory distress. Identifying sensory triggers and using personalized regulation strategies—such as noise-canceling headphones, adjusting lighting, or taking sensory breaks—can make a big difference in daily life.

The eight sensory systems include:

  1. Auditory (Hearing) – Noise levels, background sounds and voices
  2. Visual (Sight) – Lighting, colors and movement sensitivity
  3. Olfactory (Smell) – Sensitivity to scents and odors
  4. Gustatory (Taste) – Textures, flavors and food preferences
  5. Proprioception (Body Awareness) – Awareness of body position and movement
  6. Tactile (Touch) – Sensitivity to textures, fabrics or physical contact
  7. Vestibular (Balance & Movement) – Sensation of motion, dizziness or balance issues
  8. Interoception (Internal Awareness) – Sensations like hunger, thirst or emotions

Recognizing and respecting sensory needs benefits everyone, not just autistic individuals. Workplaces, schools, and public spaces can normalize sensory-friendly accommodations like quiet rooms, flexible seating, and scent-free policies. By understanding sensory regulation and advocating for adjustments, we can create environments where everyone feels comfortable, focused, and supported.

Co-occurring diagnosis

Autism rarely exists in isolation. According to the Diagnostic and Statistical Manual of Mental Disorders (DSM-5-TR), autistic individuals are more likely to experience a range of co-occurring mental health and medical conditions, including:

  1. Anxiety (up to 84%)
  2. Depression (26%)
  3. Epilepsy (35%)
  4. Gastrointestinal issues
  5. Metabolic disorders
  6. Sleep disorders

Co-Occurring Conditions and Autism – Autism Research Institute

There are also strong connections between autism and post-traumatic stress disorder (PTSD). The two conditions share overlapping symptoms like sensory sensitivities, difficulties in social situations, repetitive behaviors, emotional regulation challenges, avoidance and communication difficulties. Autism and PTSD: Overlap, link, and treatment

Some conditions, like obsessive-compulsive disorder (OCD), attention-deficit/hyperactivity disorder (ADHD) and sensory processing disorder (SPD), share similarities with autism, sometimes leading to diagnostic confusion. Because of this, it’s crucial to seek care from professionals who understand autism and its co-occurring conditions.

Autism can be challenging due to social stigma, unique sensory needs and co-occurring conditions that often accompany it. But it doesn’t have to define or constrain anyone’s future. With the right strategies and support, challenges can become growth opportunities.

The path forward isn’t just about managing autism. It’s about creating spaces where autistic individuals can thrive in a way that works for them, unapologetically. In our next article, we’ll explore the ways society can embrace and support neurodivergent adults, paving the way for a more open and accepting future.


Adult Autism: Thriving in the Workplace and Building Relationships

Adults diagnosed with Autism Spectrum Disorder (ASD) can lead fulfilling lives despite the challenges they face in a world full of barriers to success. Recognizing the obstacles and embracing the strengths that come with autism can lead to fulfillment in the workplace and more meaningful connections.

Personal and professional relationships play a key role in wellness for autistic and non-autistic people alike. Differences in social cues, communication styles, and emotional expression can sometimes create misunderstandings. However, these differences can also offer opportunities for deeper connection and learning. When both autistic and non-autistic individuals make the effort to understand and support one another, relationships become richer, more authentic, and more fulfilling for all involved.

Strengths and struggles of autistic employees

Unique sensory needs and rigid workplace expectations that don’t accommodate different approaches can add pressure for autistic employees, who must work harder to meet standards that may not align with their natural ways of thinking and operating. While bright lights, loud noises and open office spaces can overwhelm anyone’s nervous system, these conditions may be particularly challenging for many autistic folks. Likewise, misunderstanding social cues or receiving vague instructions from supervisors can lead to stress and confusion. Employees with autism often experience heightened emotional responses in these environments.

“Autistic individuals often feel emotions deeply and can easily sense when their coworkers are upset,” said Alisyn Van Note, a licensed professional counselor specializing in autism for Burrell Behavioral Health. “This can lead to a defensive response or emotional overload, making it hard to manage work stress due to the mask they wear to fit in.”

The emotional burden of masking autistic behaviors can significantly increase the risk of burnout. Autistic burnout is more than simple exhaustion. It’s an intense, overwhelming state caused by prolonged masking, sensory overload and the constant effort to navigate environments that don’t accommodate neurodivergent needs. Unlike general workplace burnout, which is often linked to overwork, autistic burnout can lead to heightened sensory sensitivities, difficulty with communication, and even a temporary loss of skills.

As burnout worsens, masking becomes harder, making it more difficult to regulate emotions, maintain productivity, and meet social expectations. This can lead to misunderstandings, conflicts, or performance struggles that may ultimately result in job loss—whether due to an employer’s decision or the individual leaving to protect their well-being.

Despite the difficulty of adapting to workplace norms, many autistic individuals leverage their unique strengths to excel in their careers. Their preference for structure and routine makes them dependable and committed team members. A keen attention to detail allows them to catch inconsistencies others might overlook, making them highly effective in precision-based work. They often display deep focus, expertise, and dedication when engaged in meaningful tasks. Many thrive in environments where they can work independently, demonstrating strong self-motivation and efficiency without the need for micromanagement. These strengths contribute valuable, innovative problem-solving skills that can help any organization succeed.

Relationships, social life and masking

One requirement for an autism diagnosis involves social-emotional difficulties, which affect how individuals connect with others. Although ASD has some common traits, every autistic person is unique. Some autistic people thrive in social settings and have meaningful relationships. These same people may need time by themselves to recharge once their social energy runs out. Interactions are much more complex for others who may struggle to interpret social cues, understand context or navigate conversations without taking all words literally.

“Autistic individuals think in facts first, whereas most neurotypical people, or ‘allistics,’ think with emotions,” Van Note said. “These differing ways of processing emotions and communication can lead to misunderstandings. For example, when an allistic asks, ‘How are you?’ and the autistic person answers honestly, ‘Not great, it’s been a rough day,’ it can cause confusion. An autistic person might also hear ‘I’m fine’ and interpret it literally, missing the emotional cues that would prompt further conversation.”

Building supportive relationships is crucial for anyone’s mental health. While autistic people may express empathy in nontraditional ways, they care deeply about the well-being of those they love. It’s essential to recognize that autistic individuals, like neurotypical people, desire relationships, friendships and intimate connections. However, their needs in these relationships can differ significantly, whether around physical touch, emotional regulation or sensory experiences.

Many autistic people communicate directly and honestly, which can sometimes cause challenges in relationships if this straightforward communication style is interpreted as rude or seems abrasive. It can also lead to clear, open conversations without hidden agendas that build deep and trustworthy connections. Enthusiasm for topics they love can bring excitement, shared learning, and unique perspectives to relationships.

Although we are all unique as individuals, neurodivergent and neurotypical people benefit from relationships built on mutual understanding, respect, and authenticity. When we embrace each other’s differences and communicate with openness and empathy, we create stronger, more meaningful connections that enrich everyone’s lives.

Success in careers and connections

Dr. Seth Allen, ED.D., director of Autism Services at Brightli affiliate Burrell Behavioral Health, highlights the importance of understanding and collaboration in both professional and personal settings.

“There is no ‘one-size-fits-all’ approach, so collaboration is key,” Allen said. “It’s essential to ask and listen to individuals about what accommodations or supports will work best for them.”

Healthy relationships allow for growth and learning, even when the process takes time and intentional effort. Autistic individuals often feel pressure to mask their traits—suppressing stimming, forcing eye contact, or carefully scripting conversations—to fit into neurotypical expectations. Over time, this mental and emotional burden can lead to exhaustion, anxiety, and a diminished sense of self.

But when workplaces, friendships, and families foster environments where autistic people feel truly comfortable and authentic, everyone benefits. Autistic individuals can engage more fully without the stress of masking, and neurotypical people gain deeper, more meaningful connections built on mutual trust and understanding. Embracing neurodiversity doesn’t just support autistic individuals. It enriches communities, strengthens teams, and creates space for all minds to thrive.

Adult Autism: The Path to Diagnosis

In decades past, the general public saw Autism Spectrum Disorder (ASD) as something that only affected children. Today, thanks to more awareness and better research, we’re starting to see autism in a new light. However, outdated diagnostic criteria, gender biases and misconceptions about what autism looks like have left countless autistic adults navigating life without a formal diagnosis. Many learn to mask their traits, mimicking neurotypical behaviors to fit into society. Masking might help in social situations, but it can be deeply exhausting, leading to constant stress, burnout and a painful feeling of never truly fitting in.

A decade-long study by the Journal of American Medical Association (JAMA) Network found autism reports in young adults have increased by 450%. In 2011, about 2.3 out of every 1,000 people were diagnosed with autism; by 2022, that number had grown to 6.4 per 1,000. Source: Autism diagnosis on the rise, according to trends study | autism Speaks This dramatic increase is more than a number. It illustrates the expanding presence of autistic adults, drawing attention to critical gaps in support and resources that still need to be filled.

For adults who begin to recognize they may be autistic, self-diagnosis is often the first step. With limited access to autism-informed providers and a medical system that struggles to identify autism in adults, many turn to research, personal reflection and the experiences of other autistic people for answers. Self-diagnosis is a valid and meaningful way for individuals to understand themselves, especially when barriers to formal diagnosis remain high.

Why do so many adults go undiagnosed?
The American Academy of Pediatrics recommends screening all children for autism by 18-24 months, which helps identify and implement autism support early (Autism Spectrum Disorder). Unfortunately, the stigma surrounding autism may stop parents from seeking a diagnosis, as they fear that the label might limit their child’s opportunities.

Even children screened for autism may not receive accurate diagnoses. Teachers, caregivers, and doctors sometimes miss or misinterpret signs of autism. Dr. Seth Allen, ED.D., director of Autism Services at Brightli affiliate Burrell Behavioral Health, explains how misinterpretation happens.

“Clinicians might mistake speech delays for shyness, interpret social withdrawal as introversion, or dismiss repetitive behaviors as quirks, especially when a child is generally friendly,” Allen said.

By adulthood, many individuals with ASD learn to mask their symptoms, which makes it even more difficult for professionals to recognize signs of autism. Dr. Allen points out that just like children, certain autistic traits can be mistaken for personality characteristics, even though they stem from the neurological differences of autism. Some autistic individuals may never understand why they experience the world differently. Without a diagnosis, many face feelings of isolation, anxiety and self-doubt, blaming themselves for challenges that were never their fault. Society must acknowledge the importance of validation, resources and accommodations for autistic individuals, regardless of their age or formal diagnosis.

Finding Resources and Support
The journey to better understanding adult autism often requires significant self-education. Autistic adults frequently must push past medical biases and dismissive attitudes to receive a proper evaluation from a specialist familiar with diagnosing autism in adults.

Alisyn Van Note, a licensed professional counselor specializing in autism, highlights one of the most significant barriers to navigating autism: a lack of available resources.

“Ideally, every autistic person of any age would have access to a range of supports, including mental health counseling, occupational therapy, speech therapy and social groups,” Van Note said. “But for adults, these services can be incredibly difficult to access due to long waitlists, limited providers or lack of insurance coverage.”

Connecting with a counselor can be crucial for autistic adults. Therapy offers validation, helping individuals understand their unique autistic traits and begin to reframe negative experiences caused by misunderstandings or lack of prior knowledge. Understanding why certain social situations or sensory experiences feel overwhelming can bring profound relief. Instead of feeling “broken” or “too sensitive,” they can begin to see themselves through a new, more compassionate lens.

Navigating federal disability is also a significant concern for many in the adult autism community. Securing disability benefits remains a major hurdle when relying solely on an autism diagnosis. Without these benefits, many individuals find their income options limited to family support or taking on employment with its own set of risks, rewards and challenges.

The potential for discrimination in the workplace, difficulties with job retention due to sensory sensitivities or communication differences and the mental strain of adapting to an environment that may not be accommodating can seem daunting. However, the rewards can include financial independence, personal fulfillment, and the opportunity to develop valuable skills and build social connections.

Looking Ahead
Despite these obstacles, autistic adults build fulfilling lives by embracing their strengths, redefining success on their terms and creating spaces where they can thrive authentically. During Autism Awareness Month, our article series explores the realities of adult autism and provides guidance for coping. We will also offer helpful insights for non-autistic folks who want to learn how to support autistic people in their families and communities.

Follow along this month as we highlight strategies for self-advocacy, workplace success, meaningful relationships and overall well-being. By challenging stereotypes and recognizing the progress still needed, we can uplift and empower autistic adults while fostering a more supportive community for all.

    Parental Mental Health Tips

    Across the behavioral health field, we recognize the importance of offering support to caregivers, whether they sought our help on behalf of their children or for themselves. We also know there are many caregivers who don’t walk through our doors who need and deserve help.

    In August, U.S. Surgeon General Vivek Murthy issued an advisory on the mental health and well-being of parents and guardians.

    “(Caregivers) are navigating traditional hardships of parenting — worrying about money and safety, struggling to get enough sleep — as well as new stressors, including omnipresent screens, a youth mental health crisis and widespread fear about the future,” Dr. Murthy wrote in a New York Times opinion column at the time of the advisory’s release.

    When caregivers come to us with these concerns, Brightli’s partners help the full families of the clients we serve to thrive. Whether that’s by providing childcare in recovery services inpatient facilities, connecting caregivers of youths in substance use recovery with family support specialists, offering safe and judgment-free group therapy options tailored to caregivers’ issues or through other avenues, we strive to help. Below, you’ll find tips and support opportunities from our behavioral health experts that can help anyone address some of the key issues presented in the surgeon general’s advisory.

    Ways to build community and address loneliness among caregivers

    Two-thirds of parents say they don’t talk about their stress for fear of burdening others, according to an American Psychological Association study cited in the advisory. At the same time, parents and guardians – and especially single parents and guardians – experience loneliness at higher rates than other U.S. adults.

    Loneliness is a challenge many autism caregivers can experience as they address situations that are new to them, said Seth Allen, a leader in Autism Services at Brightli.

    “It is really important for autism caregivers to get connected with supports for their own well-being and self-confidence,” Allen said. His team works to create support groups among clients and to also point clients to groups in the communities he serves.

    Intentional connections can benefit any caregiver experiencing loneliness. Here are some ways caregivers can build them:

    • Set up scheduled playdates with other caregivers and their children. As your children experience valuable social interaction, so do you. You can also take turns supervising children so each caregiver gets some intentional down time.
    • Practice self-care in group settings. Whether it’s a book club, a boot camp or a birdwatching society, there are myriad community groups that let you experience activities that refill your cup and simultaneously connect you with others.
    • Seek out caregiver support groups in your community. Consider asking people in your social network, from your neighbors to your healthcare provider, for recommendations. It’s an opportunity to open up valuable lines of communication.

    Building your child’s self-worth can help you build your own

    Keylee Tesar, who helped establish a program that strengthens relationships among foster and adoptive parents and their children, said that empowering children to believe in themselves also helps caregivers nurture their own sense of self-worth.

    “When we show children love, respect and encouragement, we remind ourselves of our own strength and value,” Tesar said.

    The program features an element called “character praise,” in which caregivers highlight and celebrate behaviors they see in their children that they want to flourish. Some examples include:

    • “You worked so hard on that! Your determination is amazing!”
    • “I love how kind you were to your friend today. You have such a big heart!”   
    • “You stayed so calm and patient, even when things were tough. That’s true self-control!”

    Character praise not only enhances positive behaviors in children, but also provides immediate rewards for caregivers by activating the brain’s reward system through the release of dopamine and oxytocin. This practice boosts mood and reinforces positive behavior while fostering connection and well-being for caregivers and children. Practicing character praise with the caregivers in your life can provide similar rewards. As the surgeon general’s advisory reminds us, “Caregivers need care, too.”

    Practice the six elements of self-care

    Amy Hill, a leader in youth learning and development, has worked with caregivers for years to address their stress levels and improve mental well-being. She encourages caregivers to practice these six elements of self-care (with examples included):

    • Physical care (eating well, exercising, wearing clothes you feel good in)
    • Psychological care (taking time to reflect, learn or try something new, practicing saying no)
    • Emotional care (maintaining contact with loved ones, rereading a favorite book, self-praise)
    • Social care (dedicating time spent with others you value, participating in community groups)
    • Spiritual care (spending time in nature, praying or meditating)
    •  Professional care (engaging with coworkers, setting limits and boundaries, do rewarding work)

    As a whole, Hill said, they can help you practice mindfulness and become more aware of thoughts, feelings and the surrounding environment in the moment. Mindfulness has been shown to reduce stress, improve mental focus and boost compassion, among its benefits.

    It takes a village to care for a child; we want to contribute to yours

    Our Be Well team offers a monthly Self-Care Challenge, an activity designed to help you improve your mental health through intentional practices. November’s challenge is tailored to caregivers and offers a Bingo card filled with activities that offer caregivers time to take care of themselves so they can continue to best support our youth. They include items like:

    •  Taking a social media break
    • Jotting down three beautiful things surrounding you
    • Making a space in your home dedicated to your comfort and interests

    You can access the full November Self-Care Challenge anytime you need it by clicking this link. And you can keep up with the latest Be Well efforts by bookmarking bewellcommunity.org.

    It’s OK to seek professional help.

    Caregivers are doing the best they can with the information, resources and experiences they have had in their lives. Giving parents a safe and judgement-free space to learn, grow and heal benefits them, their children and the community. That space is available in a therapeutic behavioral health setting. If you need help, please reach out to our professional team to learn about the many options we offer. If you need immediate help in a crisis, it is only a call or text away by dialing the 988 Suicide and Crisis Line.

    50 years of Southeast Missouri Behavioral Health

    FARMINGTON — Southeast Missouri Behavioral Health (SEMO-BH) marked 50 years of service to seven Missouri counties with a celebration Nov. 1, at the Aquinas Center in Farmington.

    Farmington Mayor Larry Forsythe read a proclamation recognizing SEMO-BH’s effort to meet the community’s behavioral health needs, and leaders from SEMO-BH gave an overview of the agency’s work in southeast Missouri.

    Southeast Missouri Behavioral Health offers psychiatric evaluation, medication management, co-occurring counseling, family therapy, trauma therapy, care coordination, peer support, group counseling and group education.

    “Southeast Missouri Behavioral Health has a lot to celebrate and appreciates the relationships that it has built in the communities over the years in an effort to better serve those in need,” Southeast Missouri Behavioral Health President Cathy Schroer said.

    In the summer of 2023, SEMO-BH became part of Brightli, Inc., a parent company with a portfolio that also includes Burrell Behavioral Health and Preferred Family Healthcare, among others.

    SEMO-BH employs more than 200 people who offer individualized treatment for personal and family needs in substance-use disorders, psychiatric and behavioral health.

    “We are very proud of the commitment that our employees show on a daily basis,” Schroer said. “Their dedication and compassion to serve others is the foundation of our agency, and without them we would not be able to serve our communities.”

    SEMO-BH also offers community and preventative service programs, including suicide prevention education training.

    About Southeast Missouri Behavioral Health: For more than 50 years, Southeast Missouri Behavioral Health’s team members have provided treatment to people suffering from substance use disorders, emotional problems, psychiatric disorders and other crises. Southeast Missouri Behavioral Health offers a variety of services, including medication assisted treatment, in eight counties in southeast Missouri. Learn more at semobh.org.

    About Brightli: Brightli, Inc.’s subsidiaries include Burrell Behavioral Health, Preferred Family Healthcare, Places for People, Southeast Missouri Behavioral Health, Adult & Child Health, Firefly Supported Living & Employment Services, Comprehensive Mental Health Services, and Clarity Healthcare. While these organizations operate independently and are governed by separate boards of directors, Brightli’s parent-company model allows them to collaborate and meet the growing demand for behavioral and addiction recovery care. Learn more at livebrightli.org

    From left, Farmington Mayor Larry Forsythe reads a proclamation from the Farmington city government in recognition of Southeast Missouri Behavioral Health’s 50th anniversary alongside SEMO-BH President Cathy Schroer.
    From left, Southeast Missouri Behavioral Health Executive Vice President of Operations Angela Toman, Dr. Barron Pratte, and SEMO-BH President Cathy Schroer. Pratte is a corporate advisor who has worked for SEMO-BH for more than 46 years.
    Attendees gathered at the Aquinas Center in Farmington to celebrate the 50th anniversary of Southeast Missouri Behavioral Health on Nov. 1.
    Lead Certified Peer Specialist Crystal Parra was once a client at Southeast Missouri Behavioral Health who went on to work for the company helping clients navigate some of the same challenges she faced earlier in life.
    From left: Donna Hickman, District Office Director from Congressman Jason Smith’s Farmington office, with SEMO-BH President Cathy Schroer.